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SC Advocacy Kick-Off Meeting 2021 - Shared screen with speaker view
Ben Culbreth
30:25
We had some great questions that we'll address at the end of the call! If you have any other questions, please feel free to add them to the chat!
Maria Turner
40:29
Thanks Ben, has anybody managed to find out us living with younger onset can access the OAA & the services & benefits of the Younger-Onset Alzheimer's Disease Act,yet please ? Thank you 🙏
Ben Culbreth
41:22
Great question, Maria! We'll discuss this at the end!
CHERYLL WOODS-FLOWERS
43:44
I can help with Jermaine Johnson...Fellow CofC Grad...Already made connection with Joe Bustos
Ben Culbreth
44:25
Good stuff, Cheryll! We can discuss this more later.
Patty Younts
49:05
Any discussion about asking for an increase to the respite program from $900,000 to 1 Million?
Ben Culbreth
49:44
Good question, Patty! We'll discuss during the Q&A
Maria Turner
51:03
So thankful that the Alzheimer’s Association already started an International Brain Study in 2020 on these effects of COVID “SARS-CoV-2 Impact on Behavior and Cognition”
Beth Sulkowski
58:30
Here's a clickable link to sign up for the January 21st New Congress Advocacy Kickoff: http://p2a.co/LLBSTdo
Beth Sulkowski
01:02:26
And Maria, thanks for sharing about the new COVID and cognition study. This is so important for us to better understand. Here's a good article for anyone who would like to know more: https://www.washingtonpost.com/local/social-issues/covid-alzheimers-dementia-study/2021/01/05/998caf18-4cc9-11eb-a9f4-0e668b9772ba_story.html
Ben Culbreth
01:06:19
If anyone else has questions, please feel free to ask them here!
Maria Turner
01:09:12
thank you Taylor , as you know I was diagnosed at 48 ,have advocated for this act & living alone during a pandemic with Alzheimers is challenging , so the assistance that will be available will REALLY help me a lot , thank you Taylor for all your doing & you know I will speak to anyone I need to , to help too .
Ben Culbreth
01:09:54
Thank you for all you do, Maria! We are fighting for this for folks like you!
Maria Turner
01:10:44
Thanks Ben , it really means so much as you know 🙏
Patty Younts
01:12:32
Thanks Taylor for the info and clarification on the respite dollars.
Ben Culbreth
01:15:03
bpculbreth@alz.org
Taylor Wilson
01:15:16
twilson@alz.org
CHERYLL WOODS-FLOWERS
01:15:43
Thanks to everyone! I love my Alzheimer's family!
Maria Turner
01:15:44
Thank you all 💜Looking forward to what we can achieve together in 2021